Lorenzo's Oil

So, I watched this movie for the first time in college, and then I showed clips of it when I taught a course in Developmental Psychology at the local community college. Now, this time I just used it as Cinematherapy for my kids at work. I was wondering what happened to Lorenzo and could not find anything in the last 2 ½ years, which leads me to believe that he is still living and is still in the same condition. Because if he died, it would probably make the news and be on the internet and if he made any additional progress we would have heard about that as well. It’s a heart wrenching movie. I guess dad is still researching for a cure, but mom passed away quite a while ago from lung cancer.